My Lupus Story in Full

If you are interested in the extra long version of my lupus story, you can catch it here on the St. Thomas Trust website. HUGE thank you to them for asking me to share my story.

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  1. that was an amazing post. I can't even imagine what you're going through but its amazing you accomplished so much. its truly inspiring and makes me want to get up and just DO something unexpected. I hope everything goes well for you and am looking forward to your future posts =)

    1. Thank you so much Dez! I truly appreciate your kind words. Often, I don't feel like I'm accomplishing anything, so it feels really good to hear that people think I'm doing a lot. Thank you as well for reading. xxx

  2. Hey Anna. I found your channel on YT then wandered over here. I've been to many specialists over the last nine years and keep running into being brushed off. My anti-dsDNA has been positive in the past and my primary physician thought it might be Lupus, but because my ANA was negative, a rheumatologist decided it couldn't be. In the meantime I continued to have trouble with fatigue and joint pain. After seeing another rheumatologist who at first brushed me off, I was diagnosed with Reactive Arthritis and put on Sulfasalazine. It seemed to help a little at first but then stopped being as effective—it almost seemed to make my joint pain worse)—and started giving me annoying side effects like headaches and a weird taste in my mouth. My rheumatologist was thinking it could still be RA, but ended up leaving the practice and was replaced. The new rheumatologist initially brushed me off and told me I couldn't possibly have arthritis, that it had to be Fibromyalgia—until my anti-dsDNA came back positive again. He said that's often seen in Lupus patients but still seems hesitant to diagnose me or treat me. Meanwhile I'm miserable and desperately scrounging the internet to see if others have had a similar experience.

    From reading your story, it seems like it took at least six years to get a diagnosis—which is frustrating but gives me a little hope, as maybe my disease is developing "backwards" too. (In which case I hate to see how it feels when it's full-blown.) Your words have given me hope not to give up, so I thank you so very much for sharing your story.

    Take care!


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